A dear family friend of ours was diagnosed with Facioscapulohumeral muscular dystrophy (FSHD) at a young age. FSHD is the most prevalent of the nine primary types of muscular dystrophy affecting adults and children. Her family hosted an event to help raise awareness and funds in Vancouver which Liam and I attended. Amazing doctors from the United States and all over Canada flew in to talk about FSHD and how far they have come to finding a cure. It was an amazing evening!
To learn more about FSHD, please visit www.fshd.ca.